The next step

My appointment came through for the first week in December to meet with a consultant in Wishaw General. When I went along it became apparent that my attendance there was so they could ‘tick’ a box, my consultant who I am sure is great in his own field lacked knowledge on my newly diagnosed condition and could only say to the questions I had "If that’s a concern I can find out for you" .

The information I did receive was this:- I have Polycystic Liver Disease, it is genetic and has most likely now became apparent in my outward physical appearance due to the additional hormones in my body during and following pregnancy. I was told that there were specialists in Edinburgh and that they would refer me on to them but not to expect this to happen anytime soon.

I went home feeling a bit empty and done a bit of research on the internet, there was a few pieces mainly in America  – one reason why I thought I would do my own blog to hopefully relate to those with this condition living closer to home.

Pictures on the net are a bit gross and it seems that surgery would be the way forward – personally I felt I was too young and this would not be an option for me.